I often see people coming to the
diabetes forums wondering what they can do. Most are very
discouraged by their diagnosis and wondering where they can learn how
to manage their diabetes. Most are not too polite in describing what
their doctor said to them. Many feel that their doctor was accusing
them for their diabetes and others felt their doctor was ridiculing
them and a few felt that they were being bullied by their doctor.
This is often quite a bit to overcome,
but most answers to their questions do their best to allay their
guilt and encourage them to conquer their fears and then suggest
following links to some very positive messages. Others tell them
that they have experienced similar problems, but the people on the
forum could help them and they would learn as well.
Varun Iyengar and Adam Brown describe
in the diaTribe newsletter what Dr. Bill Polonsky said when he gave a
talk on diabetes distress at the recent IDF World Diabetes Congress
in Vancouver. He covered what this emotional state looks like, how
and why it occurs, and simple strategies for addressing it. This
reflects his research dedicated to one big question: how can we help
people with diabetes feel motivated to succeed?
Dr. Polonsky stressed that doctors and
other providers often communicate the wrong message, rather than
hope, patients hear negatives and feel fear. The reason for vigilant
management is not to live a long and healthy life, but to avoid
complications. That framing makes a difference, as people with
diabetes often go on to develop distress: an attitude of feeling
defeated by diabetes.
Dr. Polonsky shared what “diabetes
distress” sounds like in practice:
- “Diabetes is taking up too much of my mental and physical energy every day”
- “I am often failing with my diabetes regimen.”
- “Friends or family are not supportive enough of my self-care efforts.”
- “Diabetes controls my life.”
- “I will end up with serious long-term complications no matter what I do.”
How common is diabetes distress? (You
are not alone!)
The rate of diabetes distress is far
greater than is often appreciated; 39% of type 1 and 35% of type 2
patients experience significant levels of diabetes distress at any
given time. This distress cannot be treated with depression
medications because…it is not depression! Rather, it requires a
greater focus on acknowledging and addressing the emotional and
behavioral obstacles associated with diabetes.
This statement by Dr. Polonsky is the
way he turns a negative into a positive, “Well-controlled
diabetes is the leading cause of nothing!”
This is how Dr. Polonsky stresses the need to adapt
the messages people with diabetes hear from doctors, providers, and
caregivers, moving away from “blame and shame” to a new message,
positive in nature.
Varun Iyengar and Adam Brown had much
more to say about Dr. Polonsky's talk and I hope that the above link works,
as it is very interesting.
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