On September 28, we had our second group meeting with all four
groups in attendance. Tim announced we had a request for attendance
from a fifth group and he asked if there was any objection to them
joining. There was none, and Tim brought them in and introduced
everyone. The group had 14 members present of 17 members total. In
addition, they had their sponsor with them. He apologized for not
having made contact earlier as several in the group had wanted to
come shortly after our last meeting.
Both doctors summarized what they had been informed by the Society
of General Internal Medicine (SGIM) and then stated that they felt
that with the members present from the four groups that they were
right to oppose what the SGIM stated and they will continue to fight
for test strips for their members. This drew a round of applause
from everyone.
The sponsor from the fifth group asked who the blogger was and I
raised my hand. He asked if I had any more emails and I said only
one from the doctor and now two from other patients. I continued
that the two from other patients was encouraging because their
doctors have indicated they will work for their patients that want to
test and one of their insurance companies will be continuing their
current policy of reimbursing for one test strip per day. The
sponsor for the fifth group said this was the response he had
received from two companies in our state. Things seemed more on an
even keel than we had anticipated. The doctors did ask which
companies and after finding out, this made everyone a little more at
ease, as this was the two companies representing the majority of
those present.
After this discussion, the two doctors asked for a show on hands
for those on insulin and with everyone present, the numbers were
larger than expected. Tim then asked for a show of hands for those
not on any medications. The number was nine and this surprised
everyone. The sponsor of the first group stated that five of his
group were not on any medications and Tim stated that four of our
group were medication free. This meant that those on insulin were
only a couple less that those on oral medications.
Allen said the numbers are three short of those present. One of
the fifth group said she was on Byetta and another said she had just
come off Victoza and gone on insulin. Allen said that makes the
numbers come out as he was including the person that did not have
diabetes. Elaine's husband raised his hand stating guilty as
charged.
Tim then stated that we always welcome spouses of those with
diabetes that are supportive of their spouse with diabetes.
Otherwise, yes, we would prefer that they not come. Tim then asked
Allen to discuss the VA and asked if any of the new group were being
served by the VA. Three said they were veterans and Allen asked them
to move to a corner while he, Ben, and Barry talked to them.
The sponsor asked why they were singled out. I spoke up and said
we are finding people that are veterans and are not aware of the VA
benefits available to them. All diabetes testing supplies are
provided at no charge and medications have as copay, but only to the
level that is means tested or based on income less qualifying
expenses. With that two others joined the group Allen was talking
with. Our local doctor said that this is important for any person
that has been a veteran, and not just those with diabetes. This
caused two other hands to be raised. One asked if this meant that a
spouse who was a veteran could receive medications at a reduced cost.
At this, Tim asked Allen to address the entire group even if many
had heard this before. Allen said yes, and came to the front and
carefully stated that anyone who had been honorably discharged could
qualify. They would need copies of all DD forms 214 (discharge
papers) and then they would apply for VA benefits. Income would
include husband's and wife's income less qualifying expenses. He
asked which counties were represented and three counties were. He
told them that they should go to the county seat courthouse and seek
out the VA office. There they would be asked questions and if they
qualified, given a form to complete and submit to the VA. Once
submitted, then the wait would start for a determination letter
stating the VA status level and amount of copay for most medications
and certain other equipment.
Allen concluded that the VA officers at the county courthouses
were certified for both the state and federal level and could be of
assistance to answer questions and give assistance where needed in
completing the application and support at other times. The one
question was about a husband that would not consider joining the VFW
or other veterans organizations so how could they get the benefits.
Allen quietly stated that these organizations are completely separate
and unrelated when talking benefits. There is no organization to
join for VA benefits. Allen asked if there were any other questions.
None was asked and Allen gave the wife his phone number so that the
husband could call if he had questions.
Tim said that we did not cover everything we had planned, but felt
that some confusion had been eliminated and important information
clarified which had been in doubt. Both doctors thanked everyone for
attending and they wanted to talk to the sponsor of the fifth group.
Several more wanted to talk with Allen, Ben, and Barry about the
VA. Several of the new group wanted to ask me questions. I called
Tim over to see what the plans were for the future of including this
group. Tim was not sure, but asked me to gather email addresses and
he would make sure to get the email for their sponsor. One of the
group spoke up and said he had many of them and if Tim gave him his
email address, he would email the list he had including their
sponsor. I asked everyone else to write theirs on the pad I laid on
the table. Only one put the email address there.
Two of the new group asked me where I had obtained the information
for
one blog. Since one already had the blog up, I had her scroll
down to a link and click on the link. When this came up, she said
now I understand why the different colors. She read the link while I
talked to a couple of others and when she completed reading the other
link, she asked to interrupt and thanked me for my patience and now
she understood what she had been missing. I asked her to go to the
profile page, which she did and those watching said that was good to
know and when they saw the email, one asked her to click on it. They
asked then if they could contact me with questions, I said that is
why it is there.
Then their sponsor asked to speak to Tim and myself and introduced
himself as the doctor for several, but not all of the group. He
continued that he had much to learn about diabetes, but the other two
doctors had given him much to think about, and he asked if he could
also contact the two of us. Tim asked him to enter his email and Tim
sent the email addresses for the two of us and the two doctors after
they approved giving out the office emails to this doctor.
We talked a little longer and he asked about my blog, I said that
when Tim emails me his address, I will send him a message that has my
blogs listed in the signature block. He said you have more than one
blog. Tim said yes, and one is not always positive about doctors,
but he is using doctor blogs as the basis for them. He said he did
not think his people had but one of my blog sites. I said this is
possible as most were not aware of the profile page until I showed
them. We talked a little longer and the meeting ended.