For this blog, I will start with the
people that may have the least training. This is not to say that
many do not have college degrees or have not learned from experience
or the college of hard knocks. Some will do excellent work and be
able to translate information into understandable meaning for people
new to diabetes or people still learning about diabetes. Most will
not be afraid to tell patients that now is the time to learn when
they hear someone say, “It could not have been important as my
doctor did not mention this,” or “I did not hear anything about
this.”
Yes, many doctors do not cover
everything because of time constraints. This is where peer-to-peer
workers and peer mentors will become a valuable asset in working with
other diabetes patients. They can use experiences to excellent
advantage and gently challenge other patients to learn.
Peer-to-peer workers will generally be
working on a one on one basis and will report to a doctor at some
point. Some patients will do better in a peer-to-peer setting and
this should be taken full advantage of, as education is so important.
The informal setting is often more relaxing and makes the giving and
receiving of information easier. If the person giving the
information is given proper training, she/he can become a powerful
tool in getting information to other patients.
Peer mentors may or may not work with
groups of people. They can work in either an informal setting or a
formal setting. When working in a group setting, they need to be
open to taking the discussion in a direction that will teach the most
people. Having just had my first session as a volunteer peer mentor
by video conferencing (telemedicine if you will permit), there are
many areas to be concerned about. With no formal training or
certification to point to, a peer mentor must not make medical
recommendations about medications or when to take medications. This
is the function of doctors and other medically qualified individuals.
This does not mean that you are prohibited from talking about
different medications as long as you make comparisons and discuss all
sides of any issues. There are areas where you have experiences that
you may share, and many subjects that may be presented for
discussion.
If you are working with patients of a
particular doctor(s) like I am, you must set the ground rules before
hand to not conflict with a doctor's instructions. I am fortunate
that wife of this husband-wife team earned a degree in nutrition
before her medical degree, so I don't need to answer most nutrition
questions. I have been given permission to discuss pros and cons of
different diets, suggesting what works best for one individual may
not be the best for another, and then passing them to her for further
discussion. Since I am a blogger, the two doctors knew my position
on many issues and only asked me to tone down my position on a few
issues. Because they have no certified diabetes educators that will
work with them, they were looking for other means to cover many
areas. We had discussed many issues in the weeks leading up to the
shared medical appointment (SMA) and they had one SMA before this
where they discussed doing this, but this still did not prevent a
couple of the questions.
They knew areas where I could be
aggressive in nature and that I normally would not tell readers to
use a particular medication. We had a long discussion about the many
times I would suggest to patients that they may need to consider
finding another doctor. They explained their position on many of
these issues and were surprised when I stated that their position was
what I was looking for and expressed agreement. The wife did ask
that I not get too expressive about some areas of nutrition, but that
I was welcome to encourage people to find their own level for
carbohydrates, protein, and fat. She felt this could be an area of
concern for many patients as they only had one person on a low carb
diet. She as a dietitian was not concerned about fat levels other
than avoiding anything over 60%. She would prefer people stayed
under 50%, but would allow people to experiment. She also stated she
would prefer working with people at their dietary preference and if
needed encourage them to eat certain foods the help balance their
nutrients. This did not come up in the first session, but they will
be doing more testing to determine certain deficiencies and
suggesting supplements for those who cannot or will not eat certain
foods. They both said my blogs had alerted them to the vitamin B12
deficiency for patients who had been on metformin for extended
periods and they had one patient with a deficiency.
Nutritionists need to step forward and
be recognized. I am talking about those that have a four-year degree
or an advanced degree in nutrition. The field of diabetes is in need
of people that are more concerned with the nutritional value of food
consumed by people with diabetes that how many carbohydrates are in
each meal. Nutrition for people with diabetes is not a
one-size-fits-all proposition and we need guidance on an individual
basis. We have had enough of the mandates, mantras, and dogma. This
may work for some, but not the many.
One group that I have also had
conflicts with is people that call themselves diabetes coaches.
These people seldom have diabetes and come from a variety of
professional pursuits. Of the four I have dealt with, all have come
from the nursing profession. I know a few that have a dietitian
background, and another that was a certified diabetes educator. I am
not saying that there are not possibly good diabetes coaches, but I
personally disagree with many of their positions and visions of how
people with diabetes must eat, live, and sleep. I have only seen one
that recognized the value of exercise. Most diabetes coaches promote
the same mantras, mandates, and dogma as certified diabetes educators
and dietitians that are members of the Academy of Nutrition and
Dietetics (AND). This means whole grains and low fat and no
compromises. Disagree with them or question them, and they will not
keep you as a customer or client. Unfortunately, my experience has
been – it is their way, or the highway. Considering the following
paragraph, I may have had experiences with the bad apples in diabetes
coaching.
On July 30, 2012, Allison B has an
excellent blog on the Diabetes Coaches. This presented in a
different light than I have encountered. Apparently, this category
has some people that know what they are doing and can be an excellent
addition to your healthcare team. They have an international professional organization and do work across many chronic illnesses and diseases.
Some of these coaches do have diabetes and speaks well for what they
are accomplishing. Take time to read the blog as this may help you
decide that this is a group you need. Many use the telemedicine type
of communication, which means that can be successful to wide
geographical locations.
Until the lawsuit is settled and there
will be more, I will attempt to leave the registered dietitians and
AND out of discussions. If there is more news that surfaces about
them, yes, I will write about it.
Like any profession, the certified
diabetes educators (CDEs) have their bad apples. Their numbers are
not keeping pace with the need and increase of people diagnosed with
diabetes. It would be interesting to know what the actual numbers of
CDEs are and whether they are in practice as CDEs, whether they work
full-time or only part-time, or whether they are writing books and
doing speaking tours, and not actually serving patients.
If these people would do the education
that their title says, we might not have the epidemic we are facing
today. Lack of diabetes education is just that, little is actually
being taught.
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