First, I take umbrage with the term
fighter. Until a few years ago, I would probably have agreed with
you or used the word manager. I now prefer the term e-patient. This
means empowered patient. It takes the aggressive nature that fighter
implies out of the equation. In its place we use empowered. This
equates to being a patient with knowledge of the chronic disease or
illness, knowledge of the medications utilized, and a desire for more
knowledge. It indicates a willingness to be in charge of or take
ownership of the disease and work with the medical profession where
possible.
I say where possible because there are
doctors that are unwilling to work with or even treat patients that
are proactive to say nothing about being empowered. When empowered
patients interact with excellent doctors that want them as patients,
the relationship for both can be very rewarding. Respect for each
other is apparent and discussion is the hallmark of this
relationship. There is give and take, but neither is trying to out
do the other. They each know their place in the relationship and
work together. It may not be complete harmony, but the respect is
present at all times.
Even though this blog by David Spero is
from August 1, 2012, and I may not like his word usage, the ideas he
presents need discussion. David highlights a topic I wrote about
recently. I know that many patients take medications blindly
following their doctor. David says that they do not understand why
they are taking the medicine(s) or what the side effects may be.
This is true for many patients across all ages. This is a case for
what you don't know can kill you in today’s medicine.
This is why we need to become proactive
in our diabetes care and then become e-patients. We need to learn
all we can about the medication(s) we are taking and even those that
we are not taking. We need to know the possible side effects and
what the medication(s) do for us. It does not bother me that you may
not be able to pronounce the name of the medications. It does matter
that you know what each is for and how they may affect your body. It
is even more important that you know that you are experiencing a side
effect and whether it is a minor side effect that has little
consequence to your overall good health, or is a serious side effect
that may be life threatening or debilitating. Then you must contact
your doctor immediately and discuss the side effects and be
knowledgeable about the possibilities of changing medications.
Too many people end up in the hospital
because they don't know the possible side effects or ignore what
could be a side effect until medical intervention is necessary. With
most medications on the market today, it is not wise to assume that
your doctor will give you the information necessary or even prescribe
the correct medication in every instance. With the growing shortage
of physicians, more physicians employed by profit driven hospitals,
and many medications entering the market that have more severe side
effects, patients of today would be well served to become more
proactive in their care. This means using Internet sites like WebMD
to check out your medications and learn about the side effects. Or,
you may try this website. You may also use your search engine for
several terms like “learn about medications” or “learn about rx
medications.
This may be a lot of information to
digest, but you have the time to do your research and learn. You
will need assistance for diet and nutrition unless you have a lot of
knowledge or a degree in nutrition. It is best to get professional
help. Most physicians do not have the information and most educators
do not have enough. I would recommend considering a nutritionist
from one of these groups - Alliance for Natural Health, USA, or the
American Nutrition Association (ANA). I have only had dealings with
nutritionists from the ANA. While they will suggest plans, they will
normally work with you and develop a plan based on your needs or what
you want to accomplish. They will generally work to make sure your
meals are nutritionally balanced or that the meals for that day are
balanced. There are other nutrition groups as well that do not
operate on mantras, mandates, and dogma.
I challenge you to become an e-patient.
This means listening with respect to your doctor, but not being
afraid to respectfully disagree or challenge your doctor if needed.
Learn about the medications you are taking and the reason you are
taking them. Discuss these medications with your doctor and become
familiar with his reasons for prescribing each. Then research each
to see if you agree with your doctor's decision. Then learn about the
other medications that could work for you. Learn about the side
effects of those that you are taking and those you could take.
Research medications in the same class of each and see if something
might actually fit your circumstances and possibly be more effective.
Please consider becoming an e-patient
and realize the benefits. Good doctors will appreciate that you are
taking ownership of your disease or illness and become more willing
to discuss the different treatments. You will be less likely to need
to be a fighter as your doctor will be more willing to fight for you
instead of with you.
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