June 27, 2014

When People with Type 2 Know More Than the Doctor

No, I am not saying in general, but just about type 2 diabetes. This is becoming more the rule than the exception for many doctors. Patients are fast learning that their doctor just doesn't know much about diabetes. Yes, they can make a diagnosis, but often they can't make an accurate diagnosis. What is harder to understand is that many make a diagnosis based on stereotypes and then later the patient finds out that they have a different type of diabetes.

Seldom do doctors do the full series of tests, blood glucose, plasma glucose, C-peptide, GAD, and A1c to determine the type of diabetes. If you are under a certain age, you have type 1, if you are over a certain age, you have type 2, and if you are in the middle, they often guess you have type 2. Some of the formal names for Diabetes-related Autoantibodies include Islet Cell Cytoplasmic Autoantibodies; ICA; Insulin Autoantibodies; IAA; Glutamic Acid Decarboxylase Autoantibodies; GADA; GAD65 Autoantibodies; Insulinoma-Associated-2 Autoantibodies; IA-2A; ICA512 Autoantibodies.

Now an endocrinologist specializing in diabetes will know the tests, and what they are telling him/her. Expect a proper diagnosis from an endocrinologist. They will determine if you have type 1, type 2, LADA, or MODY and which genetic type of MODY (presently there are 7 types).

If after a few months of dealing with the doctor, you find out that the doctor is unable to answer some of your questions, you will know that you are in charge of you own diabetes. Some doctors will refer you to a certified diabetes educator if they have one available. You may be referred to a registered dietitian, but don't expect to have much nutrition taught. You may learn quickly that the number of carbohydrates they suggest will spike your blood glucose numbers. They will push whole grains and other carbohydrates that will make it difficult to keep your blood glucose in the range you desire and your A1c below even 7.0.

Some things I have found in my journey with diabetes include:

#1. Doctors do not know everything and you can't expect them to have complete knowledge on every disease. They are not trained to know everything. (We can certainly wish they knew more about type 2 diabetes.) Endocrinologists who specialize in diabetes really know their specialty. The nurse practitioner I see is very knowledgeable and except for a few things has always answered my questions.

#2. Don't believe everything you read about diabetes. Sound advice. Even I have to reread some things to figure out that what I am reading is false. With all the different diets published and claiming to be for diabetes, I become very frustrated. I know what works for me and I follow it. The important thing to remember is what works for you may not work for others.

#3. Understand that everybody who has something to say about diabetes has both an emotional and a monetary stake in it. Most of us may not have much of a monetary stake, but what we pay for medications is still a stake. Some say that the monetary stake needs to be an income, but I say either will work and when you earn or pay for something, it is a stake.

Whatever your opinion is of pharmaceutical companies, certain medical professions, and some occupations, supposedly they all do things legally and above board – I wish!

Then we come to the openly dishonest advertisers on the internet and in the Sunday papers that offer a free meal in a hotel ballroom, but you must attend and listen to a presentation about how to reverse your diabetes. Have no doubt, the speaker will be very dynamic, and he/she will be very convincing. The question is did he have or the person they have portraying a diabetic, did they actually have diabetes. The speaker will have a series of books, DVDs, and personal therapy sessions available for a very steep price if you decide to sign up. Please don't be gullible.

On the internet, the tactics will be similar, but the prices will be slightly lower, but still high. The site will be very convincing or you may need to sign up for a webinar. They will use many tactics to separate you from your money.

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