Part 2 of 2 Parts
This part covers the wished for options
and information about medical devices.
What I’d like to see on the
websites This is what the doctor would like. While I can agree
with the list as a valuable list, there should not be a segregation
unless the device is for mainly clinicians. If the device is
primarily for patients and caregivers, then everything should be
applicable to the clinician, patient, and caregiver. I will go one
step farther by saying that often the website for most devices are
for sales only and of little or no value for clinicians, patients, or
caregivers. Most are all hype and have little usable information and
then we know that the device is of little value. The more hype, the
less value the device has.
Have a section formatted for
clinicians in particular. If the device is primarily for
clinicians, then I agree. If the device is for all, then the website
should get rid of the glitz and hype, and cough up valuable
information to let the customers know what the product can do in the
real world, not the hyped world. Again, I have found that the more
hype, the less value there is for the usefulness of the device.
Have a “how it works” section
with screenshots and concise text. While many people seem to
love videos, too often, they miss the points and the videos leave us
wondering about why all the hype. And, this I mean sincerely. We
are consumers and want information about a device, not glitz and
hype. Whether the person viewing the site is a clinician, patient,
or caregiver, we want to know what the device does for the patient,
and what other devices it may communicate with to make it more
useful. Videos are great for entertainment, but not so great for
information. If you are a visual learner, great, but don't force
non-visual learners to constantly replay a video. This will only
drive them to abandon the website and your product.
Provide a downloadable brochure for
patients/families and another for clinicians. Now if
manufacturers want to make separate downloadable brochures for
clinicians and one for patients/caregivers, I will not object as this
could help both. I do strongly agree with the doctor on this point,
brochures are easier to read and mark up than many PDF files. Both
may be easily forwarded, but the brochure will be the easiest for the
patient to understand.
Include information regarding the
relevant evidence-base supporting use of the product. Yes, this
would be nice for both the clinician and patients. The more hype we
have to read the less likely we are to consider the device.
Include information on how
valid/accurate the data collection is compared to conventional
clinical practice. This would be appropriate for most devices,
especially since the specifications will probably be not as
restrictive as devices that are used in the proper way in a lab
setting. Most clinicians will need to realize this to understand
that the devices are not for use in a lab, but out in the real world
by real patients trying to help themselves. Most websites are not
properly set up clearly to explain what clinicians are seeking and
often not what patients are seeking. Often there is so much “feel
good” hype and glitz that patients and clinicians can find little
useful information. This will lead both to look elsewhere and maybe
overlook a device that could be very useful. When will manufacturers
learn?
Offer a free 30-day trial. This
is purely a sales pitch and why a doctor would suggest this is hard
to understand. The reason many companies offer this is because they
know that if people order something, they are seldom going to return
it unless it is so bad that people are angry with the product. Even
then some people will not return the product and companies are
counting on this and know the sale has been made.
Summarize how the product is
different or better than similar available products.
This is also a sales tactic and we see
this done when a company feels they have a superior product, but be
careful, as often this is done to hide weaknesses as many are
familiar with in software products.
Summing it up. The doctor has in
general done her homework and offers good advice to manufacturers.
Like many products, medical devices will be one product that doctors
will often be called on to give an opinion about. Some doctors are
blogging about devices and some patients are doing this. Should we
rely on the information? This is difficult to answer, as not
everyone is honest about relationships they may have with a
manufacturer.
Some doctors are very reputable and
will clearly state if they have any relationship with a manufacturer.
In general these devices can be relied upon. Most patients are also
very clear that they have a relationship with a manufacturer or if
they are speaking from experience with the device. If they are
actual users speaking from experience, generally these reviews can be
relied on.
The weakness is that there is seldom a
database of device reviews and everyone is not privy to the reviews
that have been made. As much as we want to have information we can
rely on, I seriously doubt this is a priority for manufacturers as
most are only concerned about sales and will continue to put out all
the hype they can to “convince” consumers their device is what
they need.
Maybe the doctor was engaging in some
wishful thinking, but until enough people speak up, we will not have
reliable information for most devices. Until manufacturers
understand what may drive sales, we will continue to have hype,
glitz, and very little information of value. If people, doctors,
patients, caregivers, and others will refuse to promote medical
devices from manufacturers that have poor glitzy websites and refuse
to give the information needed by all concerned, then we have lost
and hype will continue in device promotions.
Yes, I have been overly expressive
about hype and glitz, but from experience, this is the biggest turn
off for me about the few devices I have investigated. Websites that
say “This is a must have for your peace of mind,” or similar
statements have made me leave the website and look elsewhere for
something similar. My peace of mind is knowing that this is probably
the poorest product available.
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