In reviewing some of my blogs, I have
found several that have gained readership beyond what I anticipated.
This says there is a need for people to understand what they need to
know at the early stages and to review some topics after they have
gained additional knowledge. It is important to say that I am not an
expert, but hopefully my readers are finding some information that
they have been able to apply with the help of their meters and that
they are adapting some information to their own management of
diabetes.
Also, this statement may prove helpful
to some as they read other diabetes blogs or websites – “what
works for me, may not work for you.” Other people use this - “your
mileage may vary” to help them understand that the results worked,
but not as well as they hoped. Those of us that blog about diabetes
understand that, and know that some ideas are helpful, some ideas
make sense, but don't get the great results for them, and a few ideas
just don't help. I have found this happens to me and I have a few –
now many pages of helpful sites (the URLs and a brief summary) that I
use to review from time to time. I apply what I find works for me
and keep the information for future reference. Sometimes when one
thing quits working, I return to my list and see if something else is
now working.
I may overuse this, but testing is
important and goes a long way to helping you discover what you body
will allow and still get the test results you want. The meters are
not expensive (often your doctor will hand them out free), but it is
the test strips that are expensive. Insurance will only cover a
limited number. I have found it worthwhile to talk with the medical
insurance people about allowing extra testing shortly after
diagnosis. Some will allow extra for a couple of months and then go
back to their allowance, but most will require a letter from your
doctor. Forget Medicare, they will only allow one or two test strips
unless you are on insulin and then you are allowed four test strips
per day. This is unreasonable at best and criminal what they will do
to people needing to learn how different foods affect blood glucose
readings. For those unable to obtain or afford extra test strips,
okay, check with the manufacturer for financial assistance. Most do
have this and if you follow their instructions, you may qualify.
In writing about diabetes diets, I made
some statements about the collusion between four government agencies
and four diabetes organizations. Now another blogger on the
nutrition side is speaking out about two government agencies and
taking their “experts” to task for our obesity epidemic. She
also has an excellent discussion about her organization and their
part in promoting the obesity epidemic. This is also why they do not
want us testing to see how different foods affect our diabetes
management. This last sentence is what drove my thoughts in writing
about getting our test strips back from Medicare. It even caused me
to listen to one of the candidates for congressional representative
from my district and ask some rather direct questions about why USDA
was working so hard to give out bad nutritional advice – to which I
was totally ignored and then several others asked similar questions
which were also ignored. Since the candidate is the wife of our
current Secretary of Agriculture, it did my spirits good to see her
defeated.
There are many good reasons to ignore
some of the quasi professionals in the Academy of Nutrition and
Dietetics and the American Association of Diabetes Educators when
they do not attempt to help many of us with type 2 diabetes which I
blogged about here. Even my cousin that is a certified diabetes
educator has now disowned me for some of my positions. Another
cousin that has been helping me with nutrition when I am a volunteer
peer mentor says she likes working with me and was very surprised at
the reception she has received and has continued to have with some of
one doctor’s patients. Once she stated she would not be pushing
high carbohydrates and low fat, but wanted to work with them at the
level they were at, whether low carb or what ever type of regimen
they were wanting to discuss, she has been well received. She has
now consulted with another group of patients with the same doctor
that are interested in nutrition.
My second peer mentoring session with a
husband and wife practice in Kansas for October was good. The
primary discussion was on different meters and the proper blood
glucose levels or guidelines they should follow. I wish I would have
had the second question from Diabetes Mine and the second comment to
the discussion, but we did cover most of the points. Many were not
enthused about the ADA guidelines and wondered about the points in
Jenny Ruhl's website here and here. I stated that they were
excellent targets for many people. I asked if anyone was
hypoglycemically unaware or recently had a low that they were not
aware of until they tested. No one had such an experience that they
were aware of and I warned them about this and knowing the signs of
sweating, nervousness, being lightheaded, and the other symptoms.
That did bring one admission from a patient saying now that he knew
what to look for; he may have had one in the last month. He admitted
that when he tested the reading was 73 mg/dl and an hour later the
reading was 88 mg/dl.
I asked him how long it had been since
eating and he said about 7 hours because he had not felt good and
skipped the noon meal. I asked what medication he was taking and he
stated it was one of the sulfonylureas and yes he had taken it at
noon. I advised him to talk to the doctor before leaving that
afternoon and ask about skipping the medication when he felt like not
eating. When the doctor came to get the next patient he did ask and
she stated he should not have taken the medication unless he was
above 150 mg/dl. He said he had not tested and she advised him to
always test if he knew he would not be eating. She stated this would
guide him on taking the medication. She asked if there were other
questions on medication and not eating – there were so she said
they would cover this later before the session ended. I then
explained what can happen if someone was high and took their
medication without eating and got the hypoglycemia symptoms, but
their test showed they were in the upper 80s or in the 90s. I said
the symptoms of hypoglycemia can happen when they have a rapid drop
in blood glucose levels. One person spoke up and said like a false
positive. I agreed, but warned them that testing was important just
the same.
Next I asked if any of them had pizza
from time to time. Of the 12 patients in the room eight admitted to
having a piece or two with the family. So I then asked how many were
on a regimen of higher that 40 percent fat for a meal. Six answered
yes, and I talked about not testing at one or two hours post meal,
but at three or four hours and said this was known as the “pizza
effect” because of the fat content that would slow the absorption
of carbohydrates. I said I realized many of them could not use that
many test strips, but for those that could, they should test at half
hour intervals starting at 2 and one-half hours after eating and test
until the 4 and one-half hour mark. One woman said she had read this
someplace and had tested at the 2 hour, 3 hour, and 4 hour points and
her high had been somewhere between the 3 and 4 hour points, so she
knew I was right. I stated that it would vary from person to person,
but that even a few people might have the high after four hours. One
person asked if this would apply to her being on insulin. I said
yes, and asked which insulin. She said Novolog and I said
definitely, and advised her that she could be like me and only have a
3 and one-half hour effective period. She stated that as far as she
could determine she was getting a 4 to 4 and one-half hour effective
period. I suggested that she think about not injecting her insulin
until after she had eaten, but to test before meals as always and
count her carbs she would be eating to determine the dose, but not to
inject until the end of the meal. She said she would ask the doctor.
I then had a few other questions before
the end. I wished everyone happy holidays and both doctors asked me
to remain online until all questions had been answered. The first
question was the woman on insulin and the doctor said let her think
on it, and she faced the video cam and asked if I had suggested this
and why. I responded that this had been raised when discussing the
“pizza effect” and the doctor said now she understood the
question and that she agreed with my suggestion and it would maximize
the effectiveness of the insulin. Then she stated that this would
also be a good idea for those on sulfonylureas. Then she asked if
anyone thought they had slow emptying stomachs although she did not
think anyone did. No responses, so she continued that injecting
after eating could also help these people in case anyone had friends
with this problem.
The rest of the questions were answered
and the husband asked how people felt this was working. Of the 14
people present, only one said it was not helpful and that was because
he was still not on medications. The other person that was not on
medications said it still was a help for him because he knew what
needed to be done if he had pizza with the grandchildren. He said he
would have to exercise longer, but how to test was still valuable to
him. The husband asked how many would attend in January and 13 of
the 14 said yes. Then a person asked a question about something I
had written in my blog about the reason insurance companies limited
test strips. The wife asked, “the one saying about the collusion
between four government agencies and the four diabetes professional
groups and them not wanting us to learn what high carb and low fat
diets did to our health.” The person said yes, and the doctor said
she agreed and her husband said he agreed as well. He went on to say
that how were we going to maintain our health on the limited number
of strips.
He then announced something that
surprised even me. They had written all of the test strip
manufacturers and all of the insurance companies they knew were being
used by people there and were waiting to receive replies from two of
the manufacturers. He said the responses to date would require
copies of the front page of each person's federal form 1040 for the
prior two years and they would need two copies of each, one set for
the test strip manufacturer and one set for the insurance company.
Once they had all the copies, they would send them all in and then
they would be provided with a list and what would be allowed for each
person. At that time, an email would be sent to each person with the
details and a return form to say if they wanted to participate or
not, and what their cost would be and the amount the insurance
company would allow. He concluded by saying that it may not
benefit everyone, but unless they participated, they would not know.
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