This is a valid question for everyone
and should include diabetes patients as well. The other question in
this article is perhaps the question educators are asking is, “what’s
in it for me?” What is the value and what's in it for me are two
questions that make a patient stop and think, do I really need these
services if that is the attitude fostered by people that are supposed
to be professionals.
Sure, I admit that I have taken one
completely out of context, but the question does need clarity and
definition, which really begs for another question. If a member of
the National Certification Board for
Diabetes Educators can state such a question, then maybe, just maybe,
we have something to be concerned about and wonder if the test people
need to pass to be certified as a diabetes educator is really the
correct test for certification? And, another question – are they
really qualified and do they understand diabetes to be able to relate
to the patients?
And what about the hours they need to
have working in their profession? Is really what is needed to make
these professionals caring and understanding about patients with
diabetes. It seems to me that this is lost on many patients when the
attitude is one of mantras and you must follow the American Diabetes
Association's guidelines or risk losing your certification.
This “one-size-fits-all” mantra is
an indication that the CDEs are out of touch and unwilling to work
with the patient as an individual. This to me as a patient, says I
may not need the services of a CDE when I do not follow the
guidelines of either the ADA or AADE. I have been fortunate to find
what works for me and with fine-tuning it from time to time should be
able to maintain reasonably good health. That is providing something
besides diabetes does not complicate the issues.
I do have several friends that are
CDEs, mostly from the registered nurse (RN) profession. When I am
told that they are speaking as a RN or their primary training, I will
listen and I have received some excellent advice. They know from
experience that if they are speaking as a CDE, my eyes will probably
glaze over and I have probably tuned them out. How do they know
this? Because we have talked about the different topics encompassing
the CDE profession and they have learned that if they are advocating
the ADA way, I will be contradicting in nature and quoting from some
of the ADA areas that are newly published that they are not up to
date on.
With the medical field changing daily,
it is not easy for them to stay up-to-date and I do try to reeducate
them. I will send them URLs for the latest information and direct
them to the latest information that disagrees with what they have
learned. Since they are friends, I try to be polite, but
occasionally they know that even they cannot follow some of it as the
AADE has not approved the change.
None of my CDE friends are overly happy
that several of us have an informal group (more along the lines of a
peer-to-peer group) and work with each other at the level of the
individual. We follow the idea (mantra if you will) that as long as
something works for you, and if your A1c shows that it is working,
don't change. As individuals, we seldom find something that works
identically for each of us. A few of us have friends or relatives
that have the credentials as a CDE, but we do not invite them to our
get-togethers. Almost all of us refuse to have meetings with the
CDEs that work with our doctors or endocrinologists.
We do need to be clear as patients what
the definition for a CDE is and says. To quote from this article, “A
CDE is a medical professional who possesses comprehensive knowledge
of and experience in diabetes management, prediabetes, and diabetes
prevention. The CDE plays a unique and essential role for people
affected by diabetes.
The CDE is a recognized and highly
respected credential in the industry. Diabetes self management
education from a CDE can lead to better control and can also decrease
short and long-term complications that strain the healthcare system
and cause unnecessary pain and suffering to patients.
The reality of diabetes is that it
touches many different aspects of a patient’s life. Certified
educators therefore come from a variety of backgrounds ranging from
nurses and dietitians to exercise physiologists and podiatrists.
They are required to have knowledge across multiple disciplines.
“All diabetes educators need to be
aware of new technology and therapies and how to incorporate them
into the unique management plan they design for patients.”
The above is quite a statement. I wish
it was as comprehensive as it appears on the surface. Diabetes
self-management education (DSME) is played up in articles such as
this and in reality is seldom taught. It has been replaced too often
with mantras of “do this and do that” without the education.
There are some excellent education programs available, but not
promoted by or used by CDEs.
One such program is BGAT (blood glucose
awareness training). Most (there are a few exceptions) CDEs do not
even understand what this is and since the AADE does not support it,
few will learn about it. The few that do use it are with progressive
endocrinology practices like the Joslin Diabetes Center, and the
Diabetes Behavioral Institute.
Another area that CDEs want to
ignore is peer-to-peer groups. It is most unfortunate that a study
has not been done comparing peer-to-peer groups with CDE trained
groups. Most studies use usual care (meaning nurses and others) with
peer-to-peer groups always doing better in helping
lower A1c's – often by a significant amount. Read my blog here
about some of the studies.
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