Showing posts with label Types of patients. Show all posts
Showing posts with label Types of patients. Show all posts

August 3, 2012

The Various Terms for Types of Patients


I have blogged about patients before, but I had not really researched the types of patients on the Internet. I approached my analysis from what I read on mostly diabetes sites and a few other web sites. Now it is time to discuss how some in the medical profession view patients and from some other sources. Even our doctors have different classes for us as patients. Most are very understandable and fit many patients. Most do not list us as compliant or noncompliant, although some may wish they could just label us that way.

The list I have been familiar with and that I use starts with patient, passive patient, proactive patient, empowered patient, and e-patient. I have also listed patient advocate to the list. I have listed the first three in this blog and the second three in this blog.

A doctor lists the following type of patients - passive-dependent, independent-skeptical, intellectual-researcher, expedient-flexible, and open-minded-exploring. I like that this list is a little more descriptive. Rather than duplicate his work, read his descriptions here.  This is spread out over five short pages.

The next list is different. I can understand the expansive list, but it seems a little too expanded. The list includes pleasant, courageous, angry, manipulative, demanding, drug-seeking, direct, all-knowing, noncompliant, anxious, psychosomatic, depressed, suffering patients, chronic pain, dying patients, and geriatric patients. The last type is one that needs to be listed and often is not on any list. For the author's explanations, read about the list here.

There are many other classifications for patients and this depends on the field of medicine and on the location of the patient. Fact is, I wonder if some of the patient types are designed to confuse people. Dentist have their list of patient types. Hospitals have several lists of patients types they use and some are even coded to prevent others from having an idea for the reason they are in the hospital. I am only listing one link although there are many such lists depending on the type of hospital and the patients each serves.

Neurology has a list of patient types. This is the last list I will link to as it raises many valid concerns when dealing with people that have no control of the condition they often find themselves. Nursing homes have a set of terms they use for their clients or residents. It seems many of the medical professions have their preferred list for patient types.

Psychologists and the related professions have a separate list of terms for their office patients, and those admitted to hospitals, and patients in mental facilities. There seems to be separate patient lists for records and another list of types for insurance purposes. I am still researching, but as of yet I can find no linking evidence.

In doing my reading, there seems to be different types of patients for everything and there is little crossover of patient types. Only once did I see both compliant and noncompliant listed on the same list. Three times I saw noncompliant in a list of patients. It is discouraging that patients are viewed so differently across the medical professions. I honestly feel this is to confuse us as patients and doctors in each specialty have their own code to describe us. After reading over 40 sources of patient lists, I admit I don't have a grasp on the reasons for so many different lists of patient types.

Could these lists be standardized? This is highly doubtful as I can see the need for some of the patient types in very specialized medical fields. As patients, we could generalize patient types, but it would never be accepted. We can only agree that there is a need for many patients types.

The one discussion I had with two doctors (a husband and wife practice) probably had the greatest impact on me and at the same time was the most rewarding. I ask the question of did they use the term noncompliant to describe patients. Both answered almost no immediately and stated the term was an insult to the doctor and to the patient. Each went on to explain that if the doctor did not take the time to explain a course of treatment and the reasons for the particular treatment and the patient did not understand the importance, then the doctor would be at fault if the patient did not find it important to follow the advice.

Both doctors felt that much of what others label a patient as noncompliant is the fault of the doctor. Both expressed the belief that there are some patients who will start out willingly, but dislike the routine and stop taking a medication or look to alternative medicine for answers. This is why they have developed a standard set of questions to ask any patient to assess whether the patient understands the reason for the treatment, if the patient agrees with the plan, and if there is a high indication the patient will not follow the treatment plan, or will seek alternative medicine advice.

One doctor said they had such a patient and termed this patient as an alternative medicine patient. When the doctor pressed the patient about why he even came to them, the patient answered that a correct diagnosis was being sought and if alternative medicine had a treatment, that would be the treatment of choice. If alternative medicine did not have a treatment, he would follow their treatment. Further discussion uncovered that the patient owned his alternative medicine/health food store and was very knowledgeable. The patient said that both doctors had never used the word noncompliant with him and that was the reason he would continue to have them as his doctors.

They admitted that this was an unusual doctor-patient relationship, but that they would make the diagnosis, discuss the treatment and the reasons, and the patient would go on his way. If the patient determined that the alternative treatment would not work, he would come back for the prescription and ask any questions needed. Only once has he come back for the prescription and a renewal in the two years of being a patient.

October 21, 2011

What Type of Patient Are You?

Why am I concerned you ask? Because it is important for you to know how to get the best healthcare possible. If you have read my two blogs on types of patients, here and here, you have a better idea about yourself, and how you deal with your doctor. I hope that I have encouraged you to think and read as each illness or disease has its own problems. There is a lot of good information available for people that want to learn. There is some very poor information on the Internet and people that will take your money and provide no service.

The first resource is my favorite, but you will have to decide for yourself how well you like the information. Trisha Torrey is very good at what she does and she is a patient advocate for patients. Her advice is generally on target and she has a large following.  I have used her blogs and articles for many ideas and like the way they are pulled together. Sometimes the topics are a little too interrelated and requires some sifting to find the answer to what you are researching, but generally, this is not a big problem.

The next two resources on e-patients are interrelated in a way since the first person writes for the second source as well. I have been interested in what they do for about a year, but I have not been actively reading everything until lately. They are leading areas that I am interested in, but have not had the courage to attempt. They are involved in participatory medicine, and have taken on some very active ideas and accomplished many worthy and notable actions.

I was just a passive patient for many years and I realize now how this was not a good thing, and resulted in some of my health problems. Some doctors like patients who just follow orders and will do just about anything to keep you a passive patient. They detest patients that are proactive in their care and some even reject empowered patients.

Either level is acceptable depending on how you perceive your needs. There is nothing wrong with being proactive and at the same time bringing in a patient advocate to assist you. Even many empowered and e-patients do this when they will not be able to speak for themselves. Please reread this about empowered patients. When you get to “The Empowerment Tipping Point”, this is where I feel the e-patient part is at now and will continue to be an influence.

Other organizations are still finding their way and trying to develop an influence in both areas. One group named “WEGO” claims this is “Working … and Health Activism” month, but I have not seen any other groups or organizations following this. In addition, this is only in their newsletter, which finally does have links back to their site. To me this is a poor newsletter, which I can only show you one link to part of it. The entire newsletter cannot be shown as one link.

There are now schools that teach patient advocacy (use “patient advocate” in your search engine. If you are really ambitious, there are foundations that you can join as a patient advocate. I am not a member of either so I cannot speak to which is the better organization. One is here and the second is here.

September 13, 2011

Types of Patients – Part 2

I have covered patient, passive patient, and proactive patient in the previous blog. Now I will cover empowered patient, e-patient, and patient advocate.

Empowered patients are those patients that have done extensive learning and are more than a little knowledgeable about the disease or illness they have and often about related diseases. They communicate with other patients and constantly add and upgrade the knowledge they have. They sometimes do controlled experiments from the knowledge they have received and do determine what works for them. They communicate with their doctors and often teach their doctors about their disease. Doctors are generally not intimidated (but not always) by these patients because they communicate freely and have much valuable information.

Read this blog by Trisha Torrey about being an empowered patient. Then learn the eight steps you need to know to be an empowered patient. These are necessary for many, because this separates you from other patients. After reading these, many will think they are part of this patient group. This can be very good, but read carefully.

Some will say that empowered patients and e-patients are the same. I disagree because of some differences. Some follow a different set of eight points that need to be learned, and most e-patients are even more diligent in their learning. While all patients can and do participate in online communities about their disease, it is generally the empowered and e-patients that are able to teach more information to other patients. Read this blog for another eight steps that some participatory e-patients use. Yes, both eight step guides can be used by either an empowered or e-patient.

Now to really set the e-patient apart, go to this link and look at the very top of the page. There are three sections - the center is e-patients.net blog which is where you are. The right section is Journal of Participatory Medicine which is probably new to most of us, but is a valuable resource. While most of the participants are not people with diabetes, much can be learned from them. Now investigate the left section - the Society for Participatory Medicine. This is patient participation beyond anything I have considered previously and I keep learning more.

Now that we have looked at the types of patients, yes, each person can be involved in parts of proactive, empowered, and as an e-patient. The similarities are there, but there are also some important differences in what each patient does and accomplishes. Unless you have desires to become a person of the last patient type, be proud of any accomplishment in being a proactive, empowered, or e-patient.

Patient advocates can be patients, but that is not their purpose. They have taken classes and often passed exams to become qualified as a patient advocate. Most, but not all, have received a diploma or certificate showing that they have been trained and have the knowledge to be an advocate. Most doctors and hospitals will recognize them, but a few do not like the fact that they are now between them and the patient. A few will reject patients that have hired a patient advocate. More states are beginning to realize the necessity of setting up standards.

if you are a person that is going to be unable to communicate because of an operation or increased problems because of an illness or disease, a patient advocate is an excellent person to have one your side. Most are knowledgeable about medical costs and billing, legal and hospital assistance and many other services. This can be especially helpful if you live alone and have no close relatives to give any assistance. Read this blog by Trisha Torrey and if interested follow several of the links to other blogs.

If you have followed all the links, I think you will have learned a lot. This can help you decide at what level you wish to participate as a patient, or if you are comfortable where you are. Hopefully, some of you will see the opportunity to expand your horizons as a patient.

September 12, 2011

Types of Patients – Part 1

In my research for another blog, I came across several terms I think need to be discussed. This is not a definitive list, but I think includes the bulk of patient types.

Patient
Passive patient
Proactive patient
     Above are covered in this blog
Empowered patient
E-patient
Patient advocate
     The last three will be in the next blog

Looks simple enough on the surface, but when compared to each other, I have listed them in order of knowledge and sometimes education. That does not mean necessarily formal schooling as I have seen people without college degrees in each category. Many have more common sense knowledge and life experience knowledge than some medical professionals.

All of us have been patients. Everyone has to have been one at some time in their life, whether as a child or an adult. Another way of viewing patients is covered in my blog here, but I will let you read it later. This blog from May 10, 2011 on patient literacy and who is responsible for improving this shows that many in the medical community are ready for patients to step up. It is a shame that some physicians are taking a pass on what their associations are advocating.

Once you are a patient, then you normally decide what type of patient you want to be. Many people chose to listen and be led by their doctors and office staff and follow these people lock-step. As such they are making themselves passive patients. They seldom ask questions or disagree with what their doctor tells them. They seem to be disinterested in learning more about the disease or illness that brought them to their doctor.  If the doctor prescribes a pill or cure that heals them, that is all they are concerned about. If there is not a pill or cure, then they are at a loss and often seek out herbal medicine or quasi-medicine people promising a cure.

Proactive patients are people that attempt to learn all that they can about an illness or disease they have or are suffering from. They educate themselves by what ever method they can. Some utilize their local library, some get access to a medical library, and today, most use the internet to research and learn. Proactive patients attempt to ask knowledgeable questions of their doctors and other healthcare providers. They want to engage the doctors in their care, but may be ignored. These patients then may seek other doctors because they want knowledge and not being patronized or having fear thrown at them.

If they have doctors that answer questions and that talk with them to help them learn, they will try to expand their knowledge and work with this doctor to get the best care possible. Not that this will always be possible because of unforeseen circumstances, but they at least feel they have had the opportunity and are often more satisfied in the outcomes received. These patients are good people, but often overload their doctors with information that they are looking for help in deciphering some of the information.

Proactive patients often look to the next levels for aid and assistance for information they do not understand and to help sort out the relevant and helpful information. Where do I fit in this listing - I am not sure. I am a very proactive patient and am striving to become a more empowered patient, but I don't think I have fully reached this level yet.

I will continue the discussion of the last 3 patient types in part 2.