Showing posts with label One-size-fits-all. Show all posts
Showing posts with label One-size-fits-all. Show all posts

August 6, 2014

Are CDEs the Correct Support for You?

Are certified diabetes educators the correct people to go to for support? Before I answer, there are some facts that need to be stated. The American Association of Diabetes Educators (AADE) claims 13,000 members. The Academy of Certified Diabetes Educators (ACDE) makes no claims, but declares that 18,000 have passed the National Certification Board for Diabetes Educators (NCBDE) examination.

What all organizations avoid telling us or stating includes:
Not telling us how many are retired and not working as CDEs.
How many have taken up research work and not working as CDEs.
How many are its officers in ivory towers and not working as CDEs.
How many are on book promotion tours and not working as CDEs.
How many are only working part-time as CDEs.
How many are working full-time as CDEs.

There are also others that work as CDEs and RDs and therefore not full-time as CDEs. With all this missing information it is small wonder that many of us with type 2 diabetes are not seeing or receiving any education from CDEs. This also explains why many in rural areas of the United States do not have access to CDEs as most live in highly dense population areas where they have plenty of patients.

I do not begrudge the many type 1 people as they often have greater need for CDEs than many type 2 people do. And from experience, I know that most CDEs do not want to work with type 2 people. That is not to say that type 2 people refuse to see CDEs. We do mainly because we are older and understand when we are fed mandates and mantras and are just expected to follow them. A new member in our community had classes and decided to attend, but after the first class, refused to attend the next two classes. When asked why, she said the CDE was teaching to the lowest common denominator and handing out mandates. She refused to answer the simplest of questions and only answered two questions the entire class.

When she started mandating the number of carbohydrates we should eat at every meal, one of the class members told her that a dietitian would be having a class following her class and she should stick to diabetes education and not what we should eat. Only two of the class were on insulin and those were the questions she answered. When one of the class asked about burnout and depression, she quickly pickup up her materials and said she had a patient appointment to go to and left.

The dietitian followed and would not discuss any questions and stuck to her prepared material. She was also mandating that everyone should eat a minimum number of carbohydrates per meal (55 grams minimum) and to make sure that they stayed on a low fat meal plan (no more than 10% of total calories). When a class member asked why everyone had to eat the same one-size-fits-all meal plan and could not adapt their meal plan to what worked for them, the RD said she was the instructor, had the needed education, and they were to follow her instructions. At that point most of the class got up and left.

When the person showed us the schedule and who the CDE and RD were, a few of our support group could see that they both had the titles of CDE and RD. So when many of us type 2 people see this, we understand the conflict of interest (COI) because of the support of the AADE by Big Pharma and the Academy of Nutrition and Dietetics (AND) by Big Food and Big Agriculture.

The person started asking questions of those present and we took the time to explain and answer all of his questions. Tim got his email address and said he would be sent email addresses for the rest of the members and we would try to answer most of his questions. Allen told him that a one-size-fits-all solution did not work for type 2 diabetes and that if CDEs and RDs would not properly assess his as an individual, then he was right not to attend classes.

March 26, 2014

One-Size-Fits-All

Ouch! I can't believe I wrote that. But, my anger is up and I'm tired of Doctor One-size-fits-all. This is the second doctor in as many years that I have walked out on during an appointment and told I would not be back. I walk out because he was not listening, but reading the lab results and writing prescriptions. He had not even looked at my current medications list or heard me when I said he would need to send the prescriptions to the VA clinic.

I was having a giant problem with the prescriptions. My blood pressure has been stable for more than a year at 120 over 60 to 70 and yet he was prescribing a larger or stronger dose of the same medication I am currently taking. When I complained, he asked why his nurse aid had recorded 140 over 90. I replied that after walking at a brisk pace from the waiting room, she took my blood pressure immediately instead of waiting five minutes, which is the suggested time.

I suggested that he take my blood pressure again, but he stated – not necessary. When I looked at the next prescription, I almost choked. My lipid panel was in good shape and better than normal. Yet the doctor was prescribing a dose of statin at double the strength I was currently prescribed and actually quadruple what the VA doctor had told me to use because of muscle problems and I was splitting the pills. Even the pharmacist agreed with this action as I had asked about cutting the pill because their was not a indication that the pill could be cut.

I may not understand doctors, but I was heating up under the collar and I wanted an explanation. I politely asked, and was unceremoniously told I was the patient. As I closed my briefcase and put my coat on, he looked up and asked where I was going and told me he was not through. I quickly looked at two more prescription and I knew I could not stay with this doctor. My daily aspirin dose was increased from 81 mg to 325 mg and he was writing one for Plavix, which the VA had taken away.

I dropped the completed prescriptions on the desk and said I was leaving. He said I needed the increased medications and I asked how much extra commission he was to receive and walked out. The nurse was escorting the next patient in and said I couldn't be through. I said I was permanently through and kept walking.

I have thought about this for a couple of weeks and wonder why procedures were changing so drastically. I knew the patient I met on the way out, but he wisely said nothing. We talked afterward and he had received increases in several medications. He was taken off insulin and prescribed three oral medications. He was not filling them and had already found another doctor. He did not want to be off insulin and on management of his diabetes with oral medications.

He is young enough that he could have LADA (unofficial type 1.5) and had a longer than average honeymoon. He told me he has not told the doctor he will not be coming back, but will wait and cancel his appointment the week before.

Both of us talked about the one-size-fits-all attitude of doctors and why they cannot treat us as individuals. His new doctor has called him and asked him to consider going on oral medications. He is now looking for another doctor. I suggested that he find one that would do the proper testing and determine if he was not insulin dependent and a LADA.

We had a long talk and he finally called an endocrinologist who would see him and do the tests. He decided to go to a different city and be away from his doctors of the past.