Showing posts with label Diabetes secrecy. Show all posts
Showing posts with label Diabetes secrecy. Show all posts

May 13, 2016

Secrecy about Diabetes Not Good

It has been a few days since the woman with type 2 diabetes was released by the hospital and Brenda called today and said she was back in the hospital and still in very poor condition. She said that this time is was hyperglycemia and she had not been okay when her husband left for work and he had sent the children off to school before he left. He did go home at noon and found her unconscious and called the ambulance.

Brenda would be picking up the children today and taking them directly to the hospital per the doctor's instructions. The husband had objected, but the doctor told him that his wife may not recover and he felt the children should see her before something happened. He then agreed and said he would allow this.

Sue said that after the children arrived and saw their mother, they started crying and between tears asked their dad why they were keeping everything a secret when something was wrong with mom. The father asked the nurse to come over and explain what was the matter with their mother. Sue said the nurse asked the doctor if this was okay and he said he would as soon as he checked on their mother.

After he returned from that, he sat the children down and spent about 20 minutes answering their questions and then he had the nurse continue while he checked on their mother again. Brenda said both did an excellent job of answering their questions and the nurse showed them some slides about diabetes and explained what each slide meant and what they should be watching for when their mother was released from the hospital and then what steps to take.

Brenda said that the eldest then asked her if this was serious. Brenda had to think before she answered. She told them that it was serious as long as her mother would not talk about it with her and thought that she still had a secret from them. If she started talking to them about her diabetes and what she may need when they were not in school, then it could be less serious. The daughter then asked about what she had done the first time by calling 911 and if that was the correct action. Brenda said under the circumstances is was the correct thing to do. This is what should have been done that morning, but their father had not realized how serious it was since she could still talk.

The father came out then and asked if Brenda could take the children home. The two put up some resistance and Brenda said she would take them to her house until their father picked them up.

The next morning, Brenda called more of us together and said the two girls had asked many questions and asked to see the medication she was taking. The eldest said that was the same as they had seen in the refrigerator at home and asked how she took it and many more questions. Brenda said they were very patient and when they asked about saying something at school, Brenda said she advised them that this would not be something wise as this time. She said that this was the reason her mother had not said anything to tell them about her diabetes.

Brenda did say that she told them about the horror stories other children would tell them and while the two hospital stays by her mother were serious, they would only add to the horror stories other children would tell them. Most of this was because of misinformation that the other children had been told about diabetes.

Brenda said she would give us additional as she and Sue learn about it. She stated that this situation is scary and she hoped the woman does not lose her life over her desire for secrecy.

May 6, 2016

No Need to Be Ashamed of Your Diabetes

Yes, there is not a need to be ashamed of your diabetes. However, many people are and some go out of their way to avoid even being known as having diabetes whether it is type 1 or type 2.

We are having a discussion among several of our members as Ben and Jason have both encountered people hiding their diabetes in the last two weeks. We needed to bring Sue and Brenda into the discussion as one of the two was a woman, and she refused to talk with Jason.

Ben said that before he met the group, he was somewhat ashamed, but could only hide it from a few of us, as several others knew he had type 2 diabetes. He said he was not ashamed of his having diabetes, but did not like talking about it with others. He stated that he was always cautious around people he did not know because of the stigma that some attached to diabetes.

We told him that we did not understand as he was not overweight and seemed healthy otherwise. He said that was true, but if we remembered back, it was Allen and a few others that had taken him to the hospital when he was in severe depression. We said we remembered, and Ben said we had never made a thing about that or his diabetes. We had just helped him and made him feel welcome in the support group. Jason said we did the same for your sister, Sue when her husband outed her.

Ben said these are things that we need to remember when dealing with the two people Jason and I have met. They are near ideal weight, both have type 2 diabetes and both are on insulin. That is why we wanted Brenda and Sue since Brenda uses insulin. We asked if this was a couple and Jason said no, they had been met separately.

Brenda then said she and Sue had met with the woman and after they had gotten past the contention and the secrecy, the discussion had been fairly productive. Her concern, once she found out that there is a large diabetes support group, was how to avoid the members. She would not consider even coming to a meeting Sue said.

Allen asked if she would be accepting help from them. Brenda stated she was not sure as she would not answer many questions from them and while she admitted having type 2 diabetes, that was about all she would say other than she did not trust her doctor and would not take statins. Brenda stated that she was taking an antidepressant and another medication for blood pressure. Sue said they had a phone number and email address, but were discouraged from using them, as she did not want her children to know she had diabetes.

I suggested that she be encouraged to tell her oldest child depending on their ages. Sue said the oldest as they understood was 13 and the next was 11. Both were actively involved is school activities. Brenda said I can understand why, especially if she were to have an episode of hypoglycemia. Brenda admitted that that may not be possible, but would try to work to have this done.

Jason said that the person he and Ben had talked to kept cutting them off and did not want to talk about diabetes at all. Ben continued that all they knew was that he had type 2 diabetes and was taking insulin. He would not talk about family or give us any more information. We agreed that patience would be required. We told the four to continue and we would support them as needed.

November 11, 2015

Medical ID Importance

I don't understand people that email me and tell me that medical identification is not necessary or needed. I even had one fellow say that he has not told anyone that he has diabetes, not even his family. I asked what medication he was using and the answer came back that he was not using any medication and managed his diabetes with diet and exercise.

In this instance, I told him that I still recommend that he wear some sort of medical identification on his person. I told him that if he was involved in an auto accident and was unconscious, he could be fed with IVs that had glucose that could cause his blood glucose levels to rise rapidly. If he could not tell the hospital who his doctor is, his treatment could push him into dangers that they might not catch in time and he could die.

Even this did not convince him as he said he wanted to keep it a secret that only his doctor and he knew. I emailed him that this is something he should reconsider as accidents do happen. Then six days later, I received another email from the fellow. It turns out that the day I sent the last email, he did have an accident and was unconscious for four hours. When he asked to have his blood glucose checked, the reading was 389. He said the hospital used insulin and rechecked in five hours and he had only decreased to 245. This meant a second shot and another check in five hours. This time the reading was 102 and they did not give him another shot.

At the end, he said he would be getting a medical ID necklace with the needed information to prevent this from happening in the future. He said that the four days in the hospital had shown him how important this could be. He thanked me for pushing on the medical identification. For the present until he would be able to exercise (in about four months), he would be on two insulins, Lantus and Novolog. He asked me if it would be difficult to get off insulin. I responded that if he was determined, he should be able, if too much damage had not been done by the accident.

I suggested that he get back into the habit of exercising slowly until things felt right, watch his blood glucose readings until that happened; talk with his doctor about reducing his doses of insulin when his exercise showed improvement in blood glucose readings, and not get anxious if he needed insulin for a while longer.

He promised that would happen and he asked if he should obtain Dr. Bernstein's book, “Diabetes Solution” and consider a low carb, high fat way of eating. I said that would be a good thing and I sent him several of the URLs from this blog. I did suggest that he take it slow as his injuries could make it difficult for a while and he should not become impatient with his recovery.

His return email stated that he would as his doctor had made this clear to him and he was to be careful the first few months. It sounds like I have made a friend and he is opening up about his diabetes. 

Previous blogs about medical identification: