Showing posts with label Self-education. Show all posts
Showing posts with label Self-education. Show all posts

February 8, 2015

Diabetes 'Experts' Forcing Complications on Patients

Yes, I am making this accusation and it makes sense to me. Why else would people of importance in the American Diabetes Association (ADA) and the American Association of Clinical Endocrinologists (AACE) speak so confidently about type 2 diabetes not needing to test regularly and to rely on their A1c results only.

Dr. Robert Ratner, chief scientific and medical officer of the American Diabetes Association and Alan J. Garber, M.D., Ph.D., Professor of Medicine, Biochemistry & Molecular Biology, and Molecular & Cellular Biology at Baylor College of Medicine, Houston, Texas are both recipients of money from Big Pharma. I also have to wonder if they also receive large sums of money from Big Food, Big Agriculture, and Big Chemical. These two doctors and others within these organizations received big sums of money to limit what most patients can do.

This is why they insist that we do not test to make the complications happen. This in turn is a favor to the rest of the doctors to give them patients to treat. It is a shame that the insurance industry has to go along with the pronouncements of these doctors, but they are in the business of showing a profit. Therefore, their leaders are more than happy to limit testing supplies. What they do not realize is that the complications will cause greater expenses in the future than the test strips will cost now.

This is part of the reason I have such a dislike for the people in the ADA and the AACE that are in a position to influence guidelines and position statements. This in turn affects most of the actions of other healthcare professionals in the American Association of Diabetes Educators (AADE) and the Academy of Nutrition and Dietetics (AND). This is also the reason most of their members do not talk about testing or promote testing.

This leaves people with type 2 diabetes who cannot afford extra test strips, managing their diabetes in the dark without the means to use testing supplies that will aid them in more efficient diabetes management. These patients will not be able to determine the most reliable time to test postprandial and often find it impossible to test in pairs to help them decide how a meal affects their blood glucose levels. Those of us that have been able to do this have found that we are better able to manage our diabetes.

We have found that by reducing the number of carbohydrates consumed, we are better able to manage our diabetes. Yet both members of the AADE and AND continue to promote carbohydrates and reduced fat and this makes diabetes management more difficult for most people with diabetes. Yes, the ADA has opened the door for low carbohydrate consumption, but the members of these organizations have yet to put this into practice. Maybe the officers have accepted this, but the general membership still follows the old guidelines and the two organizations have not produced new position statements to affirm to the membership the acceptance of anything but the prior guidelines.

All of this creates an uphill battle for people with diabetes that desire to manage diabetes at a level to prevent complications. It is still possible, but takes more effort and education which most with type 2 diabetes do not receive. Most are required to self-educate to be able to manage their diabetes.

July 17, 2013

What Is A Person With Type 2 to Do? - Part 2


Part 2 of 2 parts

It is amazing the number of problems that we as type 2 patients face to learn about diabetes and how to care for ourselves. Is it any wonder many people give up and become depressed? I can understand this and try as I might, the only answer I can find is to self-educate ourselves. Yes, some can find excellent doctors, certified diabetes educators, and excellent nutritionists, (no I did not say dietitians), and excellent support groups. If you have one of these people, work very hard to keep them, respect them, and learn from them. We will all probably need to continually battle our high profit minded insurance companies for medicines and testing supplies, but this is a battle all must fight.

I am fortunate to be part of a very strong diabetes support group. Activities are slowing for the summer, but I know several people are paying attention to the FDA discussion on Avandia and several of the other diabetes drugs. Self-education is a tool we work at together, we inform each other about different studies and research that is published online, and we often talk about them by exchanging emails and occasionally using video conferences.

We as a group are thankful that we are able to talk about diabetes and while we know of some people that are outside of the group that will not talk about diabetes and are doing their best to keep it a secret, this is not a goal of any of the current members. With diabetes being the 24/7 problem, we will accept support from each other and be glad that we have this. There are three that are not members, but they do talk to different members quite frequently and we help them when asked. We know why they do not want to be members at this time and we are not pushing them to join. Two are just happy that we thought enough of them to include them on our email list. Their jobs keep them busy and away from home to the point that when they are home, they wish to spend time with their family. The third is talking to Brenda and me, but there are other factors involved as well.

I will again list several of my blogs for people to review and hopefully find information that will help them learn and become knowledgeable about diabetes. Blog 1, blog 2, and blog 3 contain information and websites to read and explore.  There is some duplication between blog 1 and blog 3.

Because many of us do not have doctors that have time to educate us, certified diabetes educators available, or facilities available to assist in diabetes education, it is our responsibility to educate ourselves. Some doctors will encourage this and others will not. The doctors that will not, often feel they are all that you need and do not want you on the internet educating yourself. So be careful and do not bring lots of printed materials to an appointment with these doctors. You would be better served by asking how they feel about you finding information on the internet. If they discourage this, then by all means use the internet and keep quiet about it. Local libraries can sometimes be useful in finding books or using their computers. Therefore, do not be discouraged if you do not own a computer.

Another resource person you may be able to use for medications is your pharmacist. Some are very helpful and again others do not feel they should help. This will often depend on how busy the pharmacist is.

November 1, 2011

Diabetes Self-Education – An Important Tool

Self-education is one of the best tools for managing diabetes. The doctors do not have the time necessary and some do not have certified diabetes educators (CDEs) available even for referral. Often the doctors do not even have a registered dietitian available that specializes in diabetes. Many, but not all of us, have had less than favorable experiences with CDEs and others, so do be careful.

Self-education is key for people to manage diabetes effectively and studies are showing that this works. My blog here with its link shows that education does work in reducing A1c's. This is just one of several studies that is receiving little attention or publication because writers cannot make it sexy enough to draw attention to it.

My second blog here is about foot care and why it is so important. However, without education, many people continue to ignore the consequences of unmanaged diabetes. Amputation is becoming a thriving money maker for many surgeons and the patients have only themselves to blame in many cases.

Another tool in the education arsenal is peer-to-peer groups. It has been shown that there is a need for these groups. The results they accomplish in reducing A1c's are positive. David Mendosa has an excellent blog about this as part of his reports from the Medicine 2.0 conference at Stanford University in Palo Alto, CA.

There are several of us with type 2 diabetes that occasional get together and exchange ideas and discuss what we have been reading. No, not a support group, but a few of us that do research and study about diabetes. We exchange emails and compare notes about different articles, press releases, and technologies to aid in our management of diabetes. An informal peer-to-peer group at best, but it has helped us in managing our diabetes more effectively.

That is also the reason for discussing the types of patients in previous blogs, here and here. This makes people more aware of what education can do to make us. Education make us more knowledgeable and assists us in making good decisions to manage our diabetes. With this now being diabetes awareness month, keep focused on education. The more education, the easier advocacy becomes and for some even activism.